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My Breast Cancer Story

5th Chemo Mess Up 

I had my oncology appointment on Tuesday 28th August 2007, but I don’t want to bore you with the details, every oncologist appointment is the same old routine, bloods taken, getting weighed, sitting and waiting for ages and ages and then getting to talk to the oncologist about how I have been for the past 3 weeks, and we already know that I have had a good couple of weeks, then on Thursday 30th August; My mum came down , as she had volunteered to take me to my next chemo, very brave lady I think because her back was giving her a lot of trouble from sitting with me through the chemo the last time she came, and this chemo is going to be a longer one to what I have already had.  The epirubicin and the cyclophosphamide; EC for short, has finished now and I will be having the Paclitaxol (Taxol) and Gemcitabine which should take approximately 4hrs to administer.  I’m not looking forward to having this one, not because of the chemo drugs, but because of the sitting around all that time while it is being administered.  I do feel though that if this chemo takes a lot longer to administer then it is obviously a harsher one so it will destroy the rest of my ugly squatters. 

With this new chemo I have to take more steroids too, I have a bumper load to take 12 hours before my chemo and another load 6 hours before, so that means I have to set my alarm clock for 3am, I will also carry on taking these steroids twice a day for the following 3 days.  As I am already aware, steroids have messed about with my sleep pattern and shrunk all my clothes, so I am expecting that I will be catching up on sleep whenever I can and probably be up half the night climbing the walls and doing something stupid like decorating or vacuuming the whole house.  I will also have to be more careful what I eat too, the only problem with that, is I can’t taste anything and have reverted to drowning everything with rich sauces and pepper to try and give some taste to my food other than metal or cardboard..  I wonder if pepper is fattening. I will have to try and remember to check on this.

At 9pm I took my first dose of steroids and my face went bright red more or less instantly , making good conversation point for Lee and my Mum, or should I say; a point for them to have a good laugh.  My head did the usual trick of whirring around and around which totally exhausted me, and feeling very confident that I would sleep well, I decided to have an early night ready for the early start tomorrow.  The thing is with steroids, is that no matter how tired you feel or think you are, they have a mind of their own and so I spent the whole night, waking up every hour, tossing and turning and flicking the duvet off and on again from the hot flushes.  I got up 4 times to straighten out my towels that I was laid between, surprisingly enough I didn’t wake Lee, but then again; Lee sleeps like a baby.  I laid there staring at him for a while, watching him peacefully sleeping, I was so jealous. 

It seemed as though I had finally gotten off to sleep when I was woken by the stupid alarm clock. . Anyways 3am and I’m sat up and downing more steroids, more pills to keep me awake, the thing that I can’t get my head around is; if I feel so tired then why can’t I get to frickin sleep. All I can say is roll on for Monday when all the steroids are finished.

Friday 31st August 2007; 9am sharp and equipped with the biggest darkest shopping bags you have ever seen under my eyes, my mum and I arrived at the chemo day unit and was immediately told that I needed to go back downstairs to have some more bloods done.  My blood tests from Tuesday showed that my white blood cells hadn’t recovered well enough for me to have my chemo, so off we trotted for me to get stabbed by an additional needle, that I didn’t think I'd have today, bloody hell, the cannula needle is enough for anyone.  As instructed I informed the blood taking nurse that the chemo day unit needed the results ASAP.  Once this was done my mum and I had to go back upstairs and wait in the waiting room, hoping that my blood work was good enough to have my chemo done today.

We sat there watching everyone come and go.  It’s weird isn’t it?  You don’t want chemo and yet when you think there is a chance that you might not be able to have it, you get all worked up cos you do want it.  It’s the typical saying that you always want what you can’t have.  Anyway after sitting around for 3 hours, a nurse came in to tell me that my bloods were fine and she was just waiting for my oncologist to sign off the paperwork to say that he was happy for the pharmacy to make up the chemo.  Whoopy doo, I can have my chemo! “How long will that take?” I asked.  I knew as soon as I had opened my mouth that I shouldn’t have asked, cos now I’m bored, thinking about being bored as the answer was a typical “As soon as the pharmacy make it up and gets it up to us”.  Arghh now if I had some hair I would be pulling it out because what I have learnt about the hospital pharmacy is that you can be waiting an hour just to get one bloody Aspirin.

My mum and I decided to have a walk about outside to get a bit of fresh air, and have a sneaky fag, we ate our sandwiches while sat on a small wall in the sun just outside the doorway and then after a good half an hour went back upstairs to see if there was any sign of my chemo yet.  Yeah I was being a little bit optimistic, I knew this was going to be a long long wait. 

Another couple of hours  and more cups of coffee, a packet of crisps and a chocolate bar later, a nurse came in and told me that my chemo still hadn’t been made up yet.  I was so tired and uncomfortable, my mum and I looked at each other and I was about to say to her “Were guna be here all day and all night at this rate” when the nurse went on to say that I couldn’t have my chemo now, 'What!!'  No chemo?, I'd been sat here all th is time and now they tell me I can't have my frickin chemo' apparantly Not.  Because this chemo was gong to take a minimum of 4 hours, there wouldn’t be enough time to administer it, as we were still looking at another couple of hours waiting to get me started.  We had been sat there for 6 hours, my arse was numb, I was high on frickin steroids andNOW they tell me to go home, I was so bloody annoyed.  What a waste of a day, you see I am learning fast that on good days, to make the most of it, cram as much as possible in, and not waste them on sitting around in bloody hospital waiting rooms.  

Another appointment was made for me to go back and have my chemo on Monday at 2pm, which I have been assured that I would get started immediately.

What a day! I am disappointed because I don’t want any delays with my chemo, I feel that by being late with it, it's giving my squatters chance to multiply again and its times like this I just wish they could cut it all out now and be done with it.  I have been told to take my steroids again on Sunday which means I will have to take my first ones at 2am and then the next dose at 8am, so I think if I get to bed early then at least I can have a good sleep prior to my alarm clock going off.

My mum’s plans were that she was going to go back home in the morning but she has decided to stay longer so that she can still take me to my chemo and Lee won’t have to take a day off work.  You see a positive out of every negative, just a shame my chemo has to be postponed just so I can get my mum to stay longer.

 

Saturday/Sunday; The weekend has been such a lovely weekend, to have my mum here for the time has been great, and I bet we have sent poor Lee deaf, having to sit there and endure our full speed Yorkshire slang gossiping mode, we did try and give him some peace and ventured into the city center to do a bit of shopping and as always my mum and I had a giggle trying on clothes, even though I came back empty handed but mum; well that is a different story as she can never go to the shops without buying something or other.   When faced with a life threatening disease you start to dissect your life and look at what is important, I have started to do that, I have started to appreciate the little things in life that before I just took for granted that they would always be there, or that they were too small to be noticed.  I was wrong, I have been wrong about a lot of things.  Coming from a modeling background, I thought looks were important, but they are not, that is just vanity and the whole world seems to put that much pressure on how we look that vanity has got way out of control.  It’s what’s within us that’s important, our personalities, not what our hair looks like or if my bottom looks big.  I have no hair and my bottom has filled out to the point that it is now exploding out of my larger than normal clothes but I am happy. I am still smiling and laughing and for the first time in my life, I have now seen that humour is a great healer.  If you feel sad, then the sadness can over take you, if you feel ill and get uptight about it, the iller you will become.  If you feel ill, but try and laugh about it, make it into a joke like Lee has done with me, it makes you feel better and the better you feel, the less ill you feel.  Without the humour that Lee and my family have brought into this tough time, I honestly don’t think that I could have been strong enough to get as far as I have with this diagnosis of breast cancer.

On Sunday evening I decided to take a sleeping tablet even though I needed to wake up at 2am to take the steroids. I just want some good sleep and with the sleeping tablets, I felt I could fall back to sleep after taking the steroids without any effort. Did it work, too bloody right it worked, I slept like sleeping beauty, without the lovely hair, it worked so great that I can’t even remember taking my steroids and the only evidence was the empty glass of water at the side of my bed and the bumper load of steroids that were absent from the little container. 

.37.

 

 

 

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17/05/2011

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